The Walls I Need to Break

Walls.

Have you ever built them?

Around your heart, brick by brick, piece by piece?

December 7th I was diagnosed with Muscular Sclerosis. I handled it all with confidence, peace, and a scary level of stone cold, “I’m fine!” to all I’ve talked with. The truth is, I actually have felt ‘fine’ about the diagnosis. It gave me answers as to why so many different instances my ‘skin hurt,’ and it explained why and what my extreme nerve pain was in November. With the best MS team and an aggressive treatment plan, I have felt “fine.”

Suddenly though, I was thinking really terrible things. Things I don’t even feel comfortable typing within this blog post! Most of them centered around my marriage and for his sake, I’ll keep it as vague as I can here for my husband. We had some things come up, arise, and somewhere within me I just felt like giving up. In the past couple of weeks I have said some really hateful and hurtful things; my shortened version will just be transparent about the fact that giving up was legitimately ON my radar. “What if I just wasn’t here anymore?” was one of my scary to admit thoughts.

I told my mom I didn’t think I could cry. Other than with my extreme post spinal tap migraine, I really hadn’t cried. I told her that I’ve had zero reason to feel the way I’ve felt and definitely to have said the things I’ve said, and then it dawned on me……….

Walls.

Within each time I thought about my MS, and every time I told someone I was doing well and fine and good, I was adding more bricks on and around my heart. In the past couple of weeks, I have felt more annoyed as a mom than I can ever remember. I’ve also felt very unhappy in my work situation and being split schools. When my mom has asked how I am, I’ve respond back, “Everything is just meh right now, Mom. All of it.” Gray. Dreary. Muddy. No, I’m not just describing the way January looks in Kentucky—that’s how I have felt internally.

Oh the difficult conversations Asa and I have had. The tears shed, the nights we did indeed need to go to bed angry with hopes of trying again tomorrow. I haven’t wanted to be touched, I haven’t wanted to be hugged, I have wanted to simply be left alone, in my own little brick bubble.

And then? Realization happened. I have always been prone to creating walls. From a young age I have self-sabotaged lots of things, and sadly have hurt people by doing so. (Just ask my ex boyfriend from high school how I ruined OUR relationship…or maybe, actually don’t.) Psychology Today actually describes a lot of different forms of self-sabotage. There’s a paragraph there that discusses control, this may help you the reader, understand it a little more.

It feels better to control your own failure rather than face the possibility of it blindsiding you and taking you by surprise. Self-sabotage may not be pretty, but it’s better than spinning out of control. At least when you’re steering the ship, going down in flames feels more like a well-maintained burn.

Control / failure…two words that pretty accurately describe my ongoing fears, well before MS. I’ve written about fear of failure SO many times here, you may even remember. With MS, what control do I have? Think about it…I was given a serious new diagnosis, I was shown the multitude of lesions on my brain, and then……..I’m fine? “Going down in flames” is a part in that paragraph that describes how I have felt like navigating life. Asa, my patient, loving, gracious husband—even described to me that instead of working on this a little at at time (specifically an area in our life we need to work on), I’ve wanted to just blow it up and quit. He wasn’t wrong.

Walls.

I have had so many of you reach out to me and DM or text. While I haven’t shared super openly what I have been feeling, lots of of you just know:

“Hang in there. Absorbing and processing a new diagnosis takes time. Give yourself all the grace”

It’s only really BEEN a couple of weeks since I have started feeling the familiar feelings of self-sabotage. Asa and I have had some really great and needed quiet moments though, and have talked so openly about this new to ME feelings of nothingness. I don’t think I can ever say that I’ve struggled with depression, but I guess in a sense, I’m walking through it right now. While at the barn I didn’t even feel joy…I felt annoyed with the mud, the amount of time to groom and clean up and do ALL the hard work; but it never has felt like work to me before now? It’s been my therapy, my happy, my peace. So where to from here? Well, my only option is up. For my kids, my husband, my career, my horses—UP.

Recently I could have stayed in bed and just slept. It was the kids’ screen time, a Friday night when they are allowed to stay up later. I contemplated just not moving…just lying there, in the dark. But thank God I made myself get up. That was not who I wanted to turn in to, that was not a chapter of my story I wanted to start writing.. so I swung my feet onto the floor, called out to Reese and played a handful of card games with her. I promised myself I would be strong for them, for all of us. I know that within my strength, I am struggling.

But I also know that with time, prayer, positive actions, and repetition of doing things that I know are healthy for me, the walls one by one will come down, brick by brick.

Thank you for being here in this space and my life. For praying for me and with me. I plead with you to stick around. Don’t let me or my walls keep you out or away. And to my husband, thank you that within your choosing me, you are loving me so wholly and purely.

The Christmas Blues: Do you Have Them Too?

It’s okay to not be okay. It’s a familiar feeling at times, as my kids are getting older...Christmas Eve comes (out of NOWHERE), and the day is generally sweet and magical. And then it’s gone. Christmas Day comes (even quicker) and the presents are opened, trash picked up, and the emptiness under the tree just stares at me. It’s not about the gifts (or the lack thereof), it’s just the reminder that the Holiday has come and gone, once again...and when it returns in a year, my kids will be even older, and things may be less magical. 

In the silence of our house on December 25th, with the kids and even my husband sound asleep...I look at the dark tree, and the fireplace that doesn’t have a fire blazing within it. (It needs to be cleaned from the day before, and our tree lights were on a timer that I didn’t feel like turning back on.) It was dark. It was quiet. And I sat there reflecting on the day. Could it have been better? Was I wrong to get the kids iPads when I already loathe screen time anyway? Did I keep my patience the best that I could? Did I share the gospel of Jesus WELL enough with my family? 

December 26th comes...I finally sleep in. My body apparently finally relaxed and I slept soundly until 10:30 in the morning. (Thank God for a husband who wakes earlier and who doesn’t mind his wife sleeping in…) I pour a cup of coffee and immediately just feel--OFF. Not mad, not sad, not angry, not happy, not anything, just off. I look around and while we’ve done a pretty great job at keeping clutter/messes to a minimum, I am even more frustrated by the clumps of Golden Retriever hair floating in the corners and (very few) dishes in the sink. I checked the temperatures outside often, wondering whether I should run outside or not...if I should go to the barn and ride, or not. Ultimately I decided to get into warm running attire and head out. I prayed my knee could handle it, that my lungs wouldn’t burn too much from the cold, and that I could do at least six miles. With the music in my ears, I took deep breaths and I took off. The pavement underneath me felt like a punching bag for my feet. With every mile, I felt lighter, and lighter, more accomplished, more okay. 

Half way through the run I paused on a bridge that overlooked a mostly frozen creek. I thanked God for my strength, for legs that can so far do this, and for loving me, even when I feel unlovable. The day has generally and still feels OFF for me. The run was great, I feel thankful to have gotten it done...but my brain is still trying to figure out what it’s thinking. I mean really; I can’t stop thinking about my businesses, what more I can do for them, about school or work starting back in a week, about motherhood and if I’m doing alright? 

This post is a conundrum post. I can’t explain how I’m feeling, not well anyway. So I guess the moral of it is that I feel like at least one person reading this may be feeling something similar, and I think it’s okay. It’s okay to have the Christmas Blues--that’s what I’m declaring this. The twinkly lights will soon be taken down, the tree put away, and while you may be wondering why that matters? I mean, you may not be a Christmas lover like me, so it might not seem like a huge deal. But it’s bigger than Christmas I think...I think it’s the letdown of the beautiful anticipation that December has been to me. And I’ve said it before...I’m struggling in this current season of motherhood and I am trying so hard to pray and trust and to find contentment in the stages that my children are in. 

I sit here and remember their first, second, third, fourth Christmases...when your son doesn’t come into the living room and say, “That’s from Target!” about his Santa gift...when their hands and wrists still had those baby dimples in them. When you were able to rock them in rocking chairs while you stared at the twinkly lights, thinking back then, maybe you were excited for them to be a bit older and bigger and to need you a little less. 

The Christmas Blues. Does this make sense? Mamas...can you feel this tonight? I’m hitting POST, and praying as I do. Tomorrow is a new day. New strength, new thoughts, new memories, new laughter, and more love. If you needed this post, will you let me know? Email me or comment below. I’d love to give you a virtual hug and be here in this walk of adulting and parenting with you. 

A Birthday Tribute to My Brother Nathan, and Asking for YOUR Help

I used to wonder if one day my brother would wake up and miraculously start talking. If he wouldn’t have any challenges walking or moving. If he would wake up one day and be a brand new person. As I take a moment to reflect on those wonders, it brings numerous different feelings up on the horizon of my sometimes fragile emotions.

Early on in dating, Asa once asked me what I thought about Heaven and what I looked forward to about it. I don’t remember word for word what I replied with, but I know I said something along the lines that I couldn’t wait to watch my brother run wild and free on the streets of gold. I can’t fathom, really. I can’t fathom my brother not being in pain, not having challenges, not having struggle after struggle health wise. But do you know what else I can’t fathom…? The amount of strength, grit, determination, will and JOY that he continues to have on a DAILY basis.

“How are you, Nate?” you can ask.

“Goo,” he will without a doubt respond, which is GOOD.

Since this is a place of transparency and because I haven’t shared much as a young woman of a special needs sibling, I also find it necessary to be real with you. When I was in the fourth grade, I remember going to bed angry. About what, I can’t remember—but I definitely was having lots of mixed emotions. I remember very, very vividly, imagining a world where Nathan didn’t exist. “I wonder what it would be like if he wasn’t here anymore,” I thought. I went to bed that way, and some time early in the morning, I heard my mom’s blood curdling scream. I heard her yelling, “SEAN!!!!!!" SEAN!!!!!!” at the top of her lungs. It was still dark out, I was SO confused, and I remember racing to the sound of her voice. I can remember seeing her on the phone, crying, speaking loudly and urgently, and Nathan on his bed, unresponsive. I didn’t know it at the time, but he had just had a Grand Mal Seizure.

I sprinted out of the room and basically ran psychotically around, and ended up in my mom’s room alone. I was sobbing. My brother Sean must have came in as I do remember him telling me to get it together. That may sound harsh, but I know that he was kind of being tugged too; as the middle child, he had different responsibilities. He needed to be strong for my parents and he needed to be strong for me, his baby sister. “I KILLED HIM!” I yelled at Sean. “I killed Nathan.”

That one memory seems to be eternally engrained in my mind and on my heart… I felt so strongly that it was my fault for picturing a life without Nathan! As my relationship with God grew and as I matured in my faith and as a person, I know that’s not how life works. It was a very horrendous, ironic incident that I had absolutely zero control over. But it still hurts to type out and also is humiliating admitting any of it.

You see, I CANNOT picture a life without my oldest brother, nor do I ever want to.

Nathan is who we have called our Energizer Bunny, forever. He has survived countless medical emergencies. He has beaten the odds time after time after time. “He won’t live past 18,” my parents have heard from doctors. “He has 1% chance of surviving this,” they’ve said. And here we are. Today he turns 38 years old. THIRTY-EIGHT. I and we don’t take his birthdays for granted. While Nathan is strong, he is also incredibly fragile. His bones don’t work they way they once did (and even then, they didn’t work great!!) He is battling several different health issues right now with insulin and glucose; he is scheduled to have oral surgery at the end of this month. There is so much more but I’d do a horrible job explaining it all so I don’t think I’ll try.

I write this to share a piece of my heart as his little kid sister…the baby of the family. Who couldn’t quite comprehend everything in my growing up years, and who may have struggled and battled trying to…but who as an adult and now mom myself…can’t really find the right words to use to describe just how MUCH I love him. Nathan is largely the reason for my faith in God. I believe he is the reason our family has stayed together. He is the reason Sean and I can dream BIG, GIANT dreams and why we keep fighting for them. He is why we all love each other SO much. He’s the reason for a lot of things and I just feel really, really blessed to be his sister.

One thing our family needs (and has needed for a long time now!) is an in home elevator for Nathan. Sean and I created a GoFundMe account for him over Thanksgiving and are pushing hard to reach this goal. Nathan’s mobility and health decreases every SINGLE year. My parents are in their sixties and take full care of him, but they have health challenges of their own. In order to safely use both floors in their home with Nathan, he sincerely needs this elevator. We are a little more than half way there, so I’m asking YOU, whoever you are and wherever you are reading this from: would you consider donating even $5? And would you please share his GoFundMe page on your social channels? You never know who will see it and be touched to give! Today is Nathan’s birthday—what an incredible gift to tell him that YOU helped!

I appreciate every single one of you who is reading this. Thank you for helping this blog be a safe space for me to write to you, and a place where I can share my heart. I feel very undeserving of my brother’s love, but gosh I am so thankful for it.

Happy birthday, Nathan Wayne! I and we love you SO incredibly much. We pray you have lots of energy today and that above all, you know how LOVED and inspirational you are!

A Much Needed Cheerful Holiday Bucket List

It’s here, it’s here, it’s really here! Hot cocoa, Hallmark movies, Buddy the Elf, Christmas lights, and pajamas! Oh wait…we’ve been living in pajamas haven’t we?! But not matching CHRISTMAS jammies!! So since our city is still largely in the middle with shut downs and re-opening and should we be out or not out; we are just thankful we don’t really have to leave the home to do some of the sweetest things on our Holiday Bucket List!

What are some things YOU want to do this Holiday season to make it special and memorable for your family? Christmas cookies always seem to make SUCH a mess, as do gingerbread houses, but it’s the best for capturing photos and documenting life where we are. And Target has the cutest supplies for at home hot cocoa bars with toppings and flavors galore, so I’m super pumped to check that one off our list!

This past weekend we took our Christmas card photo and it’s the first year ever we took it ourselves. We set up the trusty tripod (which wasn’t trusty at all because my camera actually fell off at the beginning, oh my word….) and did a mini shoot for ourselves. Y’all, I couldn’t be happier with how they turned out and I have to say that our Golden Retrievers are the best model dogs on the planet. Here! See some for yourselves!

Unfortunately Target was out of stock of the size Emma needed and get this—I had been wanting to take a matching Christmas pj photo for years. Well this year I ordered them and got the photos, but most of them don’t fit! Asa’s shirt sleeves were wayyyyy too short, Pierson’s pajama pants were four feet too long, and Reese’s nightgown was more like a mini skirt. But hey! We got the photos!! (HA!)

So let’s talk movies! We’ve watched Jingle all the Way, Jingle Jangle, Elf, National Lampoon’s Family Christmas, Christmas Chronicles, and Christmas Chronicles 2. THERE ARE SO MANY MORE TO WATCH!!

And friends, for a brief moment of seriousness, we know that during a global pandemic, all is not necessarily CALM, right? My recommendation for ALL of us, is to do things that bring JOY to our families and to the people around us. If you can hang outdoor Christmas lights, do it! Lightness will always overcome the dark, and I want to encourage you to brighten someone else’s mood during these particularly dark times.

Here is a free bucket list graphic if y’all want to use it to get your Holiday ideas flowing. Tag me if you use it anywhere on social media, I would love to see your lists! You can find me HERE on Instagram and HERE on Facebook. Happy Holidays at Home, sweet friends!